This is the real life story of Angela Burgin Logan and her experience with Preeclampsia nearly claiming her life. Just watching the preview of this reduced me to tears. Such a similar story to mine....very visceral still, how close to death she (and I came)
The part that is particularly painful is the doctors being dismissive of her symptoms and what would eventually turn out to be life threatening disease
Jul 18, 2011
Jun 19, 2011
Preeclampsia Study
It's been awhile since I have updated, but I do have some new things happening. Julia is doing amazingly well. She is 18 months old on Monday and continues to amaze us both. She has about 35 words and even can say I love you. I am so grateful for her health and the blessing she is in our lives.
I am going to be participating in the study for Preeclampsia at the University of Vermont. I am so excited for this.
I am so hoping that through the testing that I will be undergoing, I may get some answers on my current health issues. I am still dealing with numbness and tingling in my fingers and toes, an itch sometimes under the skin on the back of my head. I am achey and have pins and needles to the touch in my arms and legs. It may have to do with the preeclampsia also. They will do a dye test and study the arteries in the legs arms and uterus, and do an ultrasound of the kidneys as well. An MRI is also involved. I am hopeful that if I don't get answers for myself, this may help others and the medical community get more information on preeclampsia, the silent killer.
http://www.preeclampsia.org/forum/viewtopic.php?f=76&t=42150&p=335501&hilit=university+of+vermont
Study Participants Needed: Pregnancy Phenotype and Predisposition to Preeclampsia
This research study seeks to understand the relationship between a woman’s health and physiology prior to pregnancy and the risk of developing preeclampsia during pregnancy, as well as to gain insights into improved ways to both prevent and treat it. We are recruiting women who are planning to become pregnant within the next year and who might be at risk for the development of preeclampsia during pregnancy. If you are thinking about becoming pregnant soon and fit into one of the following categories, please contact the study coordinator:
1) If you are between 18 and 42 years old and planning to conceive your first child,
2) If you have diabetes, OR have a personal OR family history of hypertension, OR
3) If you have had preeclampsia in a prior pregnancy.
If you choose to participate, you will undergo testing on 3 occasions, one prior to pregnancy and 2 during your pregnancy. For each visit, you will be provided meals for 3 days prior to your appointment. For those who do not live locally in Vermont, 3days of a food diary can be done instead of meals being provided. During the initial visit, researchers will ensure you are not pregnant before allowing you to continue in the study. Using ultrasound and MRI, the way blood flows in your body will be measured. You will spend one night in the General Clinical Research Center (GCRC) at Fletcher Allen during each visit. Ovulation detection kits will be provided to aid your timing in achieving conception. Financial compensation of up to $375 is provided.
We are focusing on the northeast region of the United States because of concerns about travel, but if anyone is willing to come from further away, we certainly would not deny you! The main concern is that while we can offer some funds for reimbursement and travel expenses, the further you travel, the more it costs. Unfortunately we do have a limited budget.
Also if you are not interested/eligible for inclusion, please inform any friends or family members who may be able to travel to Vermont. We are also recruiting women who are trying for their first child.
Carole McBride
Clinical Research Coordinator
Obstetrics and Gynecology
University of Vermont College of Medicine
Burlington, VT 05405
(802) 656-0309
Carole.McBride@uvm.edu
I am going to be participating in the study for Preeclampsia at the University of Vermont. I am so excited for this.
I am so hoping that through the testing that I will be undergoing, I may get some answers on my current health issues. I am still dealing with numbness and tingling in my fingers and toes, an itch sometimes under the skin on the back of my head. I am achey and have pins and needles to the touch in my arms and legs. It may have to do with the preeclampsia also. They will do a dye test and study the arteries in the legs arms and uterus, and do an ultrasound of the kidneys as well. An MRI is also involved. I am hopeful that if I don't get answers for myself, this may help others and the medical community get more information on preeclampsia, the silent killer.
http://www.preeclampsia.org/forum/viewtopic.php?f=76&t=42150&p=335501&hilit=university+of+vermont
Study Participants Needed: Pregnancy Phenotype and Predisposition to Preeclampsia
This research study seeks to understand the relationship between a woman’s health and physiology prior to pregnancy and the risk of developing preeclampsia during pregnancy, as well as to gain insights into improved ways to both prevent and treat it. We are recruiting women who are planning to become pregnant within the next year and who might be at risk for the development of preeclampsia during pregnancy. If you are thinking about becoming pregnant soon and fit into one of the following categories, please contact the study coordinator:
1) If you are between 18 and 42 years old and planning to conceive your first child,
2) If you have diabetes, OR have a personal OR family history of hypertension, OR
3) If you have had preeclampsia in a prior pregnancy.
If you choose to participate, you will undergo testing on 3 occasions, one prior to pregnancy and 2 during your pregnancy. For each visit, you will be provided meals for 3 days prior to your appointment. For those who do not live locally in Vermont, 3days of a food diary can be done instead of meals being provided. During the initial visit, researchers will ensure you are not pregnant before allowing you to continue in the study. Using ultrasound and MRI, the way blood flows in your body will be measured. You will spend one night in the General Clinical Research Center (GCRC) at Fletcher Allen during each visit. Ovulation detection kits will be provided to aid your timing in achieving conception. Financial compensation of up to $375 is provided.
We are focusing on the northeast region of the United States because of concerns about travel, but if anyone is willing to come from further away, we certainly would not deny you! The main concern is that while we can offer some funds for reimbursement and travel expenses, the further you travel, the more it costs. Unfortunately we do have a limited budget.
Also if you are not interested/eligible for inclusion, please inform any friends or family members who may be able to travel to Vermont. We are also recruiting women who are trying for their first child.
Carole McBride
Clinical Research Coordinator
Obstetrics and Gynecology
University of Vermont College of Medicine
Burlington, VT 05405
(802) 656-0309
Carole.McBride@uvm.edu
Apr 28, 2011
New FDA Terbutaline Warnings
So I found out some very interesting information. I often find myself looking on the internet for information relating to my symptoms. And I just so happened to have googled: Terbutaline + FDA and found some pretty serious stuff!
FDA Drug Safety Communication: New Warnings against use of Terbutaline to treat preterm labor. 2-27-2011
http://www.fda.gov/Drugs/DrugSafety/ucm243539.htm
Additional Information for Patients:
Be aware that serious side effects, including maternal heart problems and death, have been reported after prolonged use of terbutaline to manage preterm labor
Be aware that death and serious adverse reactions including increased heart rate, transient hyperglycemia, hypokalemia, cardiac arrythmias, pulmonary edema, and myocardial ischemia have been reported after prolonged administration of oral or injectable terbutaline to pregnant women.
Treatment with Terbutaline administered by injection or by continuous infusion pump should not be used beyond 48 to 72 hours. In particular injectable terbutaline should not be used in the outpatient or the home setting.
There are certain obstetrical conditions where the healthcare professional may decide that the benefits of terbutaline injection for an individual patient in a hospital setting clearly outweighs the risk.
Oral terbutaline is contraindicated for the treatment or prevention of preterm labor.
Good to know and share....
Always good to be informed......
FDA Drug Safety Communication: New Warnings against use of Terbutaline to treat preterm labor. 2-27-2011
http://www.fda.gov/Drugs/DrugSafety/ucm243539.htm
Additional Information for Patients:
Be aware that serious side effects, including maternal heart problems and death, have been reported after prolonged use of terbutaline to manage preterm labor
Be aware that death and serious adverse reactions including increased heart rate, transient hyperglycemia, hypokalemia, cardiac arrythmias, pulmonary edema, and myocardial ischemia have been reported after prolonged administration of oral or injectable terbutaline to pregnant women.
Treatment with Terbutaline administered by injection or by continuous infusion pump should not be used beyond 48 to 72 hours. In particular injectable terbutaline should not be used in the outpatient or the home setting.
There are certain obstetrical conditions where the healthcare professional may decide that the benefits of terbutaline injection for an individual patient in a hospital setting clearly outweighs the risk.
Oral terbutaline is contraindicated for the treatment or prevention of preterm labor.
Good to know and share....
Always good to be informed......
Jan 9, 2011
My baby is one....still having side effects:))
My baby Julia just turned one. Oh my goodness! I am in awe of her. I get very wistful of all of her milestones. I hope I'm not too corny. But she started taking her first steps, she is eating real table food, she has 8 teeth now. She is about 20 pounds. She has a full head of hair. All of these things, I am just marveling at. She is such a miracle! She is a happy baby too. Her only flaw, in our eyes, is that she doesn't sleep through the night. But honestly, I enjoy seeing her in the middle of the night. It's kind of a nice bonding time. But to not have slept through the night in over a year, yeah. I hope it's around the corner soon.....
In terms of my health, I got more bloodwork recently. I was borderline low for iron, low blood sugar. And some thing showed in my blood for a possible drug allergy??
I went back to the neurologist, and he has now referred me to a Neuroscience Institute. I was stunned. But I guess it makes sense. If my symtoms were obvious, they would have figured it out by now. My symptoms are this:
.Numbness and tingling in all fingers
.Numbness and tingling in toes
.Itchiness under the skin on the back of my head
.Tingling and overall muscle hypersensitivity in legs, arms, vaginal area, roof of mouth and tongue
My liver enzymes are normal. My brain MRI is normal, as is my back. I am not taking any drugs and haven't in a full year.
The drugs that I was taking were:
.Prednisone for 6 weeks postpartum, on a 30 day taper, and one full week before the taper for the PUPPPS Rash
.Labetalol for the high blood pressure postpartum (the height of it was 160/110) for 2months
.Terbutaline as a shot in the leg to stop preterm labor at 25.5 weeks gestation and 3times between 26-37 weeks intravenously. Taken orally 5mg daily from 30-36 weeks pregnant, as prescribed by my OBGYN for constant contractions.
In terms of my health, I got more bloodwork recently. I was borderline low for iron, low blood sugar. And some thing showed in my blood for a possible drug allergy??
I went back to the neurologist, and he has now referred me to a Neuroscience Institute. I was stunned. But I guess it makes sense. If my symtoms were obvious, they would have figured it out by now. My symptoms are this:
.Numbness and tingling in all fingers
.Numbness and tingling in toes
.Itchiness under the skin on the back of my head
.Tingling and overall muscle hypersensitivity in legs, arms, vaginal area, roof of mouth and tongue
My liver enzymes are normal. My brain MRI is normal, as is my back. I am not taking any drugs and haven't in a full year.
The drugs that I was taking were:
.Prednisone for 6 weeks postpartum, on a 30 day taper, and one full week before the taper for the PUPPPS Rash
.Labetalol for the high blood pressure postpartum (the height of it was 160/110) for 2months
.Terbutaline as a shot in the leg to stop preterm labor at 25.5 weeks gestation and 3times between 26-37 weeks intravenously. Taken orally 5mg daily from 30-36 weeks pregnant, as prescribed by my OBGYN for constant contractions.
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